Lincoln had a Vagal Nerve Stimulator (VNS) placed October 24, 2018. He has recovered from the surgery beautifully and his incisions look fantastic! He is getting stronger everyday and is back to jumping on his trampoline. (He loves to jump!🧩😊)
The VNS works in 3 ways:...

Lincoln was ‘Bacon It Rain’ right outta that place. 😉 

After a very long 10 days, Lincoln was discharged from St. Mary’s on Monday. We finally felt like it was safe to get back home. We know Lincoln’s current state may not be forever but he is better than we EVER...

Well things always happen for a reason right? 

We had the car loaded and had discharge papers in hand to leave Mayo Clinic when Lincoln went into a full body, tonic-clonic seizure. 9 minutes long. Staff rushed in and administered rescue meds to stop it. I haven’t seen a...

Good Morning, Everybody!

I wanted to post an update on my little warrior, Lincoln. This trip has been an incredible blessing. Lincoln has turned a complete 180°. You would NOT believe he was the kiddo we brought into the hospital last Saturday. He is alert, sitting, sta...

Ken and I are back at Mayo Clinic in Rochester, MN sooner than anticipated. Lincoln’s condition has continued to decline and Ken and I no longer feel safe keeping him at home. 💔

So glad we are here...lots of changes needed. He's too ketotic and his ratio of fat:carbs n...

Things are moving very fast for Lincoln right now as his health has been severely regressing again. We are being confronted with a lot of tough decisions so I wanted to share an update with my loved ones so you can keep us in your thoughts and prayers.

There is no expla...

Happy Monday everyone! Wishing Y’all a most amazing week! 

I have been so touched by the kindness and support we have received while on our hunt for the right treatment for our son. Last week I received an envelope in the mail with a poem enclosed, 💗written for Lincoln...

Well...here we are again! After a very nice 2 month break, Lincoln was admitted to the Epilepsy Monitoring Unit for what we were thinking was to be a 48hr EEG. After meeting with Lincoln’s epileptologist and sharing all of our exciting news of his improvements, the doc...

Please lift my son up in your prayers. The stress from his surgeries has caused him to have clusters of seizures...23 since Sunday. The clusters only stop with rescue meds. We called 911 yesterday and he was taken to Childrens Hospital of Wisconsin where he will stay f...